Overview and background of my reasons for going to Singapore to receive HSCT for my M.S. in 2017. Well. I'm feeling really awkward; it's not comfortable for me to write about myself so publicly. However, I wanted to write this blog so I can update people about what's going on with the treatment - both in the planning stages, and while I'm over there. So here goes: Basically out-of-the-blue in February, I decided to look into stem cell treatment (Hematopoietic stem cell transplantation ( HSCT )) for my multiple sclerosis. I'd heard about this a couple of years ago, but didn't seriously consider it - it seemed prohibitively expensive and just generally not 'proven' enough for me. HSCT involves (at a basic level) suppressing the immune system with chemotherapy, and transplanting the patient's own stem cells (extracted before the chemo) to assist with the immune system's re-boot. The idea, as a treatment for MS (and other auto-immune conditi...
Hi all, things are going really well for me at the moment, it's great! On Tuesday we went to the hospital to pick up and learn how to self-inject the GCSF, the drug that encourages stem cells out of my bone marrow. I was all like, 'yeah, I've done years of self-injection, I'm all good!' but the difference is, these syringes do not come with an auto-injector, which is what I used when I was injecting all of my MS drugs (there was one auto-injector that had a light that came on highlighting the target for the needle, and another that set a bell off when it was done. More interesting (geeky) MS-life facts!). So the lack of auto injector left me with my belly exposed (the injection site), staring at the syringe in my hand--couldn't do it. Enter the Singapore Superhero who is Peter! It's his most important job at the moment, twice a day, 8am and 8pm. He's so proficient at it, what a star 😍 Anyway, so the injections have been going well, and I'm ...
The above is all I've taken away from my first appointment at the hospital today. Nah, jokes (although flattering), it was a lovely first visit, and really good to finally meet everyone. The heat and waiting outside the apartment for a taxi to Raffles Hospital meant that I was pretty bad at walking when I arrived. I felt like I gave Yati (the transplant co-ordinator / Assistant Manager / my point of contact once I was accepted for the treatment) a bit of a fright - I don't think she was expecting me to be having such difficulty walking (3.5 EDSS can be misleading, I guess, and I am so sensitive to the physical environment). But it was all good, and once I cooled down, things were a little easier. Anyway, she took my height and weight, to calculate how much drug I'll need for the chemo (photo courtesy of Paparazzi Peter): And then they took crazy amounts of blood (checking for viruses, antibodies, everything really). For my Tysabri family, there were no issue...
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